Big Society? Disabled People with Learning Disabilities and Civil Society

Lead Research Organisation: University of Sheffield
Department Name: Education

Abstract

The aim of this timely and exciting project is to explore the opportunities for disabled people with learning disabilities (LD) to contribute to and benefit from Big Society.



The research team, from The University of Sheffield, Manchester Metropolitan University, Northumbria University and The University of Bristol, will be working with organisations of/for disabled people, activists and allies to discover how disabled people with LD are participating in their communities, in public services and in social action.



The team will explore disabled people with LD’s access to social capital and networks of interdependence as well as their social emotional well-being in a context of austerity. The research will be carried out over two years through four phases:






  1. an extended literature review and policy analysis


  2. interviews with key stakeholders


  3. a period of ethnographic research working with circles of support, real employment and self-advocacy organisations


  4. a ‘researcher in residence’ phase in which a university researcher will work alongside third sector organisations in order to promote knowledge exchange and impact generation.




 



 



 



 



Dissemination and impact will be supported by the impact champions sitting on the research management group and through a series of public policy roundtables.

Planned Impact

This proposal responds directly to issues raised by impact experts at a stakeholder workshop held in MMU in January 2011 (see 'Case for Support'). The meeting, funded by MMU, brought together researchers from three universities, The Foundation for People with Learning Disabilities, MENCAP, an Independent Living Organisation and Person Centred planning coordinators, Speak Up Self advocacy, Rotherham. All of these partners now constitute the 'Impact expert research management and advisory group' who will guide the project from start to finish and, drawing on their expertise and connections, will advise the research team to ensure that the projects findings feed into practitioner, service, policy making and civil society contexts.

Our project interconnects perspectives from disability studies, community psychology, sociology and social policy and garners the perspectives of people with learning disabilities and civil society supporters, in order to deliver a number of impacts. We have two key questions: who will benefit from this research and how will they benefit?

First, academics, students and practitioners in the areas of psychology, sociology, social policy and disability studies will benefit. We will draw on our track record in disseminating our findings across disciplines and international contexts (See CVs & End of Project Report for RES- 062-23-1138). Mid to long-term impact will be made through knowledge transfer via the presentation of our findings at conferences, events and through publication. Short term impact will include teaching of under/postgraduate students on psychology, disability studies and social work courses managed and delivered by the PI and Co-Is. (see also 'Academic Beneficiaries' section).

Second, we have identified a number of key players in the Public Sector including practitioners, civil servants, service users, policy makers. We seek to raise public engagement with the lives of adults with learning disabilities and inform government thinking by disseminating information to key departments including: Office for Civil Society, the Office for Disability Issues. We aim to increase the effectiveness of public services through our relationships with our third sector impact partners and our Research Management Group.

Third, we will collaborate with third sector impact partners (list available on request) who will also be beneficiaries of the research. These partners are at the forefront of engagements with civil servants and service providers and it is through their existing relationships that we will channel key findings and recommendations. They have agreed to act as project champions to share key findings and recommendations with service providers, civil servants and policy makers. These organisations have expressed commitment to draw on our findings, utilising/adapting these within their own interventions/training support packages/services delivered to professionals etc. We will provide evidence that seeks to promote the social and emotional well-being of adults with learning disabilities - thus updating their resources with empirical evidence.

Fourth, we will collaborate with adults with learning disabilities, allies, families and professionals to promote their critical engagement with services, professional practice and enabling support mechanisms. We have devised co-operative training and impact activities (see 'Activities Schedule' attachment) that will tap into and enhance their critical capacities as key impact participants (see 'Pathways to Impact'). Operational and Organisational Change will occur in through the 'professional allied to the community' and 'impact workshop' phases of our research (see 'Case for Support'). We will seek to publicise these local changes through inter/national dissemination activities. We have costed for involvement of civil society partners as co-researchers to enhance impact.

Publications


10 25 50
Ecclestone K (2014) Political and educational springboard or straitjacket? Theorising post/human subjects in an age of vulnerability in Discourse: Studies in the Cultural Politics of Education
Goodley D (2014) Dis/ability and austerity: beyond work and slow death in Disability & Society
Goodley D (2015) The DisHuman child in Discourse: Studies in the Cultural Politics of Education
Goodley D (2014) Disability rights and wrongs revisited in Disability & Society
Goodley D (2014) Becoming dishuman: thinking about the human through dis/ability in Discourse: Studies in the Cultural Politics of Education
 
Description The findings of the research project can be broken down into three interconnected areas: theory, practice and policy. In brief, we summarise our findings under each of these headings:

Theory
Disability is a good place to start thinking about the ways in which we live together;
Thinking about disability can change the way we think about society;
Disability can change how we think about our relationships with others and to re-shape, trouble and expand on ideas of what it means to be 'human';
Disabled people's experiences and views should always be included in discussion about what a 'good society' might look like;
We live in a time when people who are 'able' to 'work hard' are valued most; we call this 'neo-liberal ableism';
It is important to question the value of what it means be a 'normal' human at the same time as recognising that disabled people are human too (DisHumanism);
We need a social policy that recognises the importance of interdependence, rather than independence;
We need to find new ways of valuing human diversity - disability is a good place to start.

Practice
Disabled people should not be 'left out in the cold' in social policy or society;
Disability is a good place to start thinking about how we might labour (work) differently and think again about what work means;
Self-advocacy enables people to fight for their rights and to speak up.
Job coaching can work well to support people into employment;
Social enterprises can also create employment opportunities for people with learning disabilities;
Business circles of support can help people become self-employed;
Circles offer a powerful form of 'co-produced' advocacy;
Information about circles should be shared widely;
We need to act now to expose and challenge widespread disabling attitudes and practices in the lives of disabled people with learning disabilities.

Policy
It is time to end the institutionalisation of disabled people; assessment and treatment units should be closed to new admissions with a view to closing all such provision within the National Health Service.
Every disabled person with a personal budget should be offered access advocacy, either by an independent advocate or through co-produced advocacy in the form of a circle of support.
There should be increased investment in proven mechanisms for supporting people with a learning disability into work (e.g. supported internships, social enterprise, self-employment - supported by business circles).
There should be increased investment for local self-advocacy groups for people with learning disabilities and that these are not replaced by large, generic advocacy organisations.

We have captured these and other key findings through the writing of accessible Summary Cards and Policy Briefings documents which can be downloaded as pdfs from our project website https://bigsocietydis.wordpress.com. Each of the cards accessibly summarises an academic output, blog or presentation.
Exploitation Route We expect that the findings re: good practice evidence base for moving people with learning disabilities into employment will be taken forward by the Departments for Welfare, Labour, PERMANDU (Prime Minister's Office) and Special Education in Malaysia, as well as Gamuda, a Malaysian construction company.

We expect that the findings re: circles of support as a form of co-produced self advocacy will be taken up by third sector; local authority social care services, by activists and allies to disabled people. Findings are being drawn on by campaigners seeking to change the law to ensure that there is a presumption that people with LD live in their own homes and communities, this campaign is under the banner of the #LBBill. We expect that the model of circles of support will also be developed by a consortium of special schools in Sheffield.

We expect that the findings re: self-advocacy will be taken up by self-advocates in Canada to develop models of paid advocacy. We also expect that the findings will become part of a wider movement to secure the future of self-advocacy in England working in partnership with Pathways Associates, Mencap, Housing and Support Alliance, Foundation for People with Learning Disabilities and the Learning Disability Alliance - all of whom we have engaged with as part of the research.

Our expectations in relation to the above-mentioned pathways to impact will be met through the development of our ESRC Impact Acceleration Account grant funded website (working title www.humanstoo.com) which will produce resources for people with learning disabilities and their allies around the themes of self-advocacy, work and independent living (drawing on findings and recommendations from our research).
Sectors Communities and Social Services/Policy,Construction,Education,Healthcare,Leisure Activities, including Sports, Recreation and Tourism,Government, Democracy and Justice,Culture, Heritage, Museums and Collections,Retail
URL https://bigsocietydis.wordpress.com
 
Description As a direct result of the theoretical engagements that took place during the project, members of the research team (Goodley, Runswick-Cole and Lawthom) with Liddiard (The University of Sheffield have set up a web hub: dishuman.com, to promote the theoretical impacts of the project in the fields of disability studies, community psychology, education and sociology. We are already seeing this work being downloaded and cited in these areas. Following an international satellite public engagement event in Malaysia, two of our partners from The Foundation For People with Learning Disabilities, were invited back to Malaysia to deliver further training re supported employment and transitions to adulthood for people with learning disabilities. They delivered training for the Malaysian government department for Welfare, Labour, PERMANDU (Prime Minister's Department) and Special Education as well as private sector organisations and the Japanese International Co-operation Agency. In addition, they were invited to deliver further training on supported employment to Gamuda, a large construction company employing 4,000 people, in Malaysia and to support the development of their exisiting supported employment programme for people with learning disabilities. These impacts will enhance the quality of life, and health of people with learning disabilities and enable them to participate in the work force and contribute to the economy. SpeakUp Self-advocacy made a successful application (with members of the research team from MMU and Sheffield Universities) to secure a Social Sciences and Humanities Research Council, Canada, Network Grant and attended a series of workshops in Toronto, Canada focusing on intimate citizenship in the lives of people with learning disabilities. Following this public engagement event in Canada, a self-advocacy organization based in Toronto is looking to develop its model of advocacy based on the research findings. SpeakUp have also submitted a proposal to Rotherham Local Authority to develop further circles of support across England. Costings for an evaluation led by MMU is included in the application. They are working alongside, Pete Crane, independent living advisor and project partner to develop further circles of support facilitated by SpeakUp. This participation in and expansion of the role of self-advocacy is a key mechanism for increasing the effectiveness of public services and policy and for promoting health and well-being for people with learning disabilities. Community living advisors have been using research findings to change the way that advocacy is offered to families. A consortium of special schools in Sheffield is collaborating with the research team to develop circles of support for parents and disabled children in Sheffield. As above the rolling out of circles of support are a key tool for enhancing health, well-being and community engagement. Findings are being drawn on by campaigners seeking to change the law to ensure that there is a presumption that people with LD live in their own homes and communities, this campaign is under the banner of the #LBBill. This will not only enhance the lives of people with learning disabilities but will promote community connection and inclusion. Vicky Farnsworth, Speak Up Self-Advocacy said: quote: This work makes me feel proud and valued and I feel part of a group of colleagues who really want to make a lasting difference"; Keith Bates, Foundation for People with Learning Disabilities said: "As this research affords us a geographical snapshot combining three pieces of our work illustrated by the five participants, it has afforded an excellent chance to reflect on the impact of current government policy. This is further boosted by plans, inspired by the project, to launch a programme of conversations about employment with local family carers as they support their son or daughter in preparing for a future as an adult."; David Fiddament, Royal National Mencap, said: "The research has been shared with our Senior Leadership Team and will help to inform the current review of our strategic priorities. Our initial research identified that tackling inequalities (Health, Social Care; Financial) should be at the core of our new vision. Your research has identified the benefits of Community Circles, for families, individuals and organisations and will be a helpful tool in shaping our thinking." Pete Crane, independent living advisor said: "Already some of the work produced by Katherine and Dan (from the Big Society project) has made a real difference in the lives of real families that we have networked with "; We seek to roll out findings and recommendations of our research through the development of our ESRC Impact Acceleration Account grant funded website (working title www.humanstoo.com) which will produce resources for people with learning disabilities and their allies around the themes of self-advocacy, work and independent living.
First Year Of Impact 2013
Sector Construction,Education,Government, Democracy and Justice,Retail,Other
Impact Types Cultural,Societal,Economic
 
Description Further Funding: Economic and Social Research Council Festival of Social Science, 2014
Amount £1,008 (GBP)
Organisation Economic and Social Research Council (ESRC) 
Sector Public
Country United Kingdom of Great Britain & Northern Ireland (UK)
Start 11/2014 
End 11/2014
 
Description Social Sciences and Humanities Research Council Network Grant
Amount $24,795 (CAD)
Organisation Government of Canada 
Department SSHRC - Social Sciences and Humanities Research Council
Sector Public
Country Canada
Start 07/2015 
End 10/2015
 
Description Expert Panel: Supported employment in the UK - trends, innovations and challenges, Department of Social Welfare, Ministry of Women, Family and Community Development. 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact A member of the research team has been invited back to Malaysia to engage in further training and development work with job coaches re: employment and self-employment.
Year(s) Of Engagement Activity 2015
URL https://bigsocietydis.wordpress.com/2015/03/31/workshop-two-supported-employment-in-the-uk-trends-in...
 
Description Presentation: A Posthuman Manifesto, Disability Studies in Education Conference, Melbourne Australia 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact After the talk, we were contacted by several members of the audience asking for further information.
Year(s) Of Engagement Activity 2014
 
Description Presentation: Becoming Dishuman: thinking about the human through disability, The Victoria Institute, The University of Victoria, Melbourne, Australia, 24th July, 2014 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact After the presentation requested copies of the paper and further information about the research project.
Year(s) Of Engagement Activity 2014
 
Description Blog post: close assessment and treatment units for people with learning disabilities 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact As a result of the publication of this blog, a member of the research team, Katherine Runswick-Cole, was interviewed for an article that appeared in The Guardian newspaper: http://www.theguardian.com/society/2015/dec/16/families-long-stay-units-learning-disabilities
Year(s) Of Engagement Activity 2014
URL http://www.metropolis.mmu.ac.uk/big-ideas/health-social-care/close-assessment-treatment-units-atus-f...
 
Description Blog: Thinking about the human; thinking about disability 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact Blog written in response to the NNDR blog: http://mic.com/articles/112964/meet-the-finnish-punk-band-changing-the-global-understanding-of-disability
Year(s) Of Engagement Activity 2014
URL http://nndr.no/thinking-about-the-human-thinking-about-disability/
 
Description Blog: A few violent individuals 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Year(s) Of Engagement Activity 2013
URL https://bigsocietydis.wordpress.com/2013/10/08/a-few-violent-individuals/
 
Description Blog: Accessing the digital age: blog post for Disability Studies in Education Conference, 2014 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact Research team members are developing a project to explore and challenge the digital exclusion of people with LD.
Year(s) Of Engagement Activity 2015
URL https://bigsocietydis.wordpress.com/2014/05/02/accessing-the-digital-age-blog-post-for-disability-st...
 
Description Blog: Hidden Cameras and Mystery Shoppers 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact 2 comments and 4 re-tweets
Year(s) Of Engagement Activity 2013
URL https://bigsocietydis.wordpress.com/2013/10/15/hidden-cameras-and-mystery-shoppers/
 
Description Blog: Intimate Citizenship and learning disability 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact 52 retweets on twitter and 150 Facebook shares
Year(s) Of Engagement Activity 2015
URL https://bigsocietydis.wordpress.com/2015/05/20/intimate-citizenship-and-learning-disability/
 
Description Blog: Learning Journeys and #JusticeforLB 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Year(s) Of Engagement Activity 2016
URL https://bigsocietydis.wordpress.com/2016/01/07/learning-journeys-and-justiceforlb/
 
Description Blog: Making Space: Exploring intimate citizenship in the lives of people with learning disabilities 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Supporters
Results and Impact We are waiting to track reactions to this posting.
Year(s) Of Engagement Activity 2015
URL http://nndr.no/making-space-exploring-intimate-citizenship-in-the-lives-of-people-labeled-with-learn...
 
Description Blog: Meeting one of Malaysia's most renowned disability activists 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Supporters
Results and Impact News article published in the Borneo Post: http://www.theborneopost.com/2015/04/26/meeting-the-goodleys/
Year(s) Of Engagement Activity 2015
URL https://bigsocietydis.wordpress.com/2015/04/06/meeting-one-of-malaysias-most-renowned-disability-act...
 
Description Blog: Ministry of Human Resources, the Labour Department, Peninsular Malaysi 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Policymakers/parliamentarians
Results and Impact Twitter shares 7
Facebook shares 10
Year(s) Of Engagement Activity 2015
URL https://bigsocietydis.wordpress.com/2015/04/01/meetings-at-the-ministries-31st-march-2015/
 
Description Blog: Rebooting humanity through disability 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Year(s) Of Engagement Activity 2015
URL https://bigsocietydis.wordpress.com/2015/02/02/rebooting-humanity-through-disability-by-dan-goodley-...
 
Description Blog: Travels with LB's flag 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact This blog builds the web presence for the project blog.
Year(s) Of Engagement Activity 2015
URL https://bigsocietydis.wordpress.com/2015/08/13/travels-with-lbs-flag/
 
Description Blog: Understanding personhood and disability: beginning a dialogue with moral philosophy. 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact The blog post received comments on the nature of the personalisation agenda & 7 re-tweets on twitter
Year(s) Of Engagement Activity 2013
URL https://bigsocietydis.wordpress.com/2013/10/17/understanding-personhood-and-disability-beginning-a-d...
 
Description Blog: Visit to Gamuda 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact The research team shared information about approaches to employment with Gamuda.
Year(s) Of Engagement Activity 2015
URL https://bigsocietydis.wordpress.com/2015/04/05/united-voice-gamuda/
 
Description Blog: What does the comprehensive spending review mean for 'people like you'? 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Year(s) Of Engagement Activity 2015
URL http://www.metropolis.mmu.ac.uk/comprehensive-spending-review/
 
Description Blog: Why Malaysia? 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact Twitter shares 6
Facebook 13 shares
Year(s) Of Engagement Activity 2015
URL https://bigsocietydis.wordpress.com/2015/03/29/big-society-on-tour-malaysia/
 
Description Conference: End of project conference 15th & 16th September, 2015 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact After the days, Katherine Runswick-Cole was invited to attend a workshop hosted by the Housing Support Alliance and People First England on self-advocacy.
Katherine Runswick-Cole was invited to present at the annual learning disability forum North West in Blackpool 2016.
Katherine was invited to meet with the research lead for Manchester Learning Disability Partnership
Discussions were held with the academics present in terms of developing future research collaborations.
Year(s) Of Engagement Activity 2015
URL https://bigsocietydis.wordpress.com/2015/09/17/15th-16th-september-2015-an-inspiring-and-energizing-...
 
Description Conference: North West Regional Forum for people with learning disabilities 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Study participants or study members
Year(s) Of Engagement Activity 2016
URL https://bigsocietydis.wordpress.com/2016/02/27/north-west-regional-forum-blackpool-24th-february-201...
 
Description Dialogue: Meeting with the Equalities & Human Rights Commission 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Policymakers/parliamentarians
Results and Impact The meeting marked the start of an ongoing relationship with the EHRC.
Year(s) Of Engagement Activity 2015
URL https://bigsocietydis.wordpress.com
 
Description Disability & Community 
Form Of Engagement Activity A magazine, newsletter or online publication
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact Discussions followed about developing impact from the project and taking forward future research collaborations.
Year(s) Of Engagement Activity 2015
URL https://bigsocietydis.wordpress.com/2015/09/17/15th-16th-september-2015-an-inspiring-and-energizing-...
 
Description Expert Panel: Blackmarket for Knowledge and Non-Knowledge, Wurld Wurchs Festival, Basel, 6th June, 2015 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact Information was shared with organisation supporting disabled people into employment in Switzerland and there is a possibility that the Blackmarket model of knowledge exchange will come to Manchester in 2016
Year(s) Of Engagement Activity 2015
URL https://bigsocietydis.wordpress.com/2015/06/09/blackmarket-for-knowledge-and-non-knowledge-basel-swi...
 
Description Expert Panel: Department of Special Education 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact A follow up visit has been arranged by a member of the research team who will return to Kuala Lumpur to deliver further training to teachers on employment and people with learning disabilities.
Year(s) Of Engagement Activity 2015
URL https://bigsocietydis.wordpress.com/2015/04/01/meetings-at-the-ministries-31st-march-2015/
 
Description Expert Panel: When #JusticeforLB met @BigSocietyDis 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact The discussions from the meeting were incorporated into the the second draft of the LB Bill
Year(s) Of Engagement Activity 2015
URL https://bigsocietydis.wordpress.com/2015/01/27/when-justiceforlb-met-bigsocietydis-26th-january-2015...
 
Description Lecture: Becoming Dishuman: re-thinking civil society through disability, 3rd Annual Trevor Parmenter Lecture The Centre for Disability Studies, The University of Sydney, New South Wales 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact After the talk, Dan and Katherine were asked to present at the International Association for the Study of Intellectual Disability in Melbourne, 2016.
Year(s) Of Engagement Activity 2015
URL https://bigsocietydis.wordpress.com/2015/08/04/31st-july-2015-becoming-dishuman-re-thinking-civil-so...
 
Description Lecture: Public lecture with Paul Gibson, Disability Rights Commissioner, New Zealand. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact This activity strengthened networks in Otago and possible future research collaborations.
Year(s) Of Engagement Activity 2015
URL https://bigsocietydis.wordpress.com/2015/08/13/12th-august-2015-public-lecture-with-paul-gibson-disa...
 
Description Lecture: Towards a DisHuman Society, University of Malaya 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact Collaboration building with colleagues at the university of Malaya
Year(s) Of Engagement Activity 2015
 
Description Meeting with the Family Network, Dunedin 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact Connections were made for potential further research collaborations.
Year(s) Of Engagement Activity 2015
URL https://bigsocietydis.wordpress.com/2015/08/12/11th-august-2015-meeting-the-family-network-dunedin/
 
Description Newspaper article: Families doubt plans to close NHS long-stay units will improve care 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Year(s) Of Engagement Activity 2016
URL https://bigsocietydis.wordpress.com/2015/12/18/families-doubt-plans-to-close-nhs-long-stay-units-wil...
 
Description Presentation Runswick-Cole, K. and Goodley, D. (2013) Being a researcher-in-residence, Doing participatory research Economic and Social Research Seminar Series Participatory Research, 28th November, 2013, The University of Sout 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact It led to Runswick-Cole being invited to participate in a workshop exploring time banking and research with people with learning disabilities.
Year(s) Of Engagement Activity 2014
URL https://bigsocietydis.files.wordpress.com/2013/11/southampton-2.pdf
 
Description Presentation: The Violence of Disablism in the UK. 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact Ater the talk, the research team met with potential research collaborators at the University of Sydney to discuss the development of a de-institutionalisation research bid.
Year(s) Of Engagement Activity 2015
URL https://bigsocietydis.wordpress.com/2015/08/04/3rd-august-2015-understanding-and-contesting-institut...
 
Description Presentation: Becoming Dishuman 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact An audience member contacted the research team to talk about replicating the study in Iceland. The application is currently in preparation.
Year(s) Of Engagement Activity 2015
URL https://bigsocietydis.wordpress.com/2014/09/14/becoming-dishuman/
 
Description Presentation: Being a researcher in residence 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact Members of the research team are developing the researcher in residence methodology in a project in preparation.
Year(s) Of Engagement Activity 2015
URL https://bigsocietydis.wordpress.com/2013/11/29/being-a-researcher-in-residence/
 
Description Presentation: DisCivilSociety Workshop at the University of Malaya, Kuala Lumpur 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact Members of the research team were contacted by participants asking for more information about setting up circles of support
Year(s) Of Engagement Activity 2015
URL https://bigsocietydis.wordpress.com/2015/03/30/workshop-one-discivilsociety-workshop-at-the-universi...
 
Description Presentation: Disability, austerity, resistance: the impact of the cuts 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact the research team were asked for further information about circles of support
Year(s) Of Engagement Activity 2014
URL https://bigsocietydis.wordpress.com/2014/11/06/disability-austerity-and-resistance-activism-in-the-a...
 
Description Presentation: Inclusive Research in Social Care 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Professional Practitioners
Results and Impact After the talk, there was a big reaction from audience members who were unaware of the role that people with learning disabilities can play in research as partners.
Year(s) Of Engagement Activity 2014
URL https://bigsocietydis.wordpress.com/2014/07/15/big-society-partners-present-at-inclusive-research-in...
 
Description Presentation: Key project findings 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact After the talk, discussion followed of how we can take forward the findings of the current research with partners to further impact on policy and practice.
Year(s) Of Engagement Activity 2015
 
Description Presentation: Runswick-Cole, K. Reflecting on Disability, Personhood and Personalisation in a time of Big Society, Faculty of Health and Social Care Seminar Series, The Open University, 30th April, 2014, Milton Keynes, UK. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact Further requests for publication details were made after the talk.
Year(s) Of Engagement Activity 2014
 
Description Presentation: Runswick-Cole, K. and Clark, L. (2014) What is Big Society? Self-advocates Conference, North West Learning Disability Forum, 26th February,2014?, Blackpool, UK. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact From this event, (with their permission) we tweeted some of the comments made by the self-advocates during the discussion from the project twitter feed. These were re-tweeted by other self-advocates, activists and members of the academic community.
Year(s) Of Engagement Activity 2014
 
Description Presentation: Runswick-Cole, K. and Goodley, D. (2014) Cruel Optimism: disability, austerity and Big Society, Health and Human Sciences Research Group, The University of Huddersfield, 5th March, Huddersfield, UK. 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Postgraduate students
Results and Impact Participants requested further information about the project.
Year(s) Of Engagement Activity 2014
 
Description Presentation: Runswick-Cole, K. and Goodley, D. (2014) The violence of disablism in neoliberal times, The Norwegian Network of Disability Research, Lillehammer, Norway, 5th-7th May, 2014 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact Following the discussion, there were requests for further information about publications from the project.
Year(s) Of Engagement Activity 2014
 
Description Presentation: What it means to be human? 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact The video of the lecture has had more than 630 views.
Year(s) Of Engagement Activity 2014
URL https://www.youtube.com/watch?v=jAjU2ypSmhI
 
Description Radio Interview: the impact of the Comprehensive Spending Review on people with learning disabilities 
Form Of Engagement Activity A press release, press conference or response to a media enquiry/interview
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Public/other audiences
Results and Impact The associated blog "What does the comprehensive spending review mean for people like you?" led to being this local radio interview which will have reached residents in the greater Manchester area.
Year(s) Of Engagement Activity 2015
 
Description Reading Rosie: Four theoretical readings of disabled childhood in a time of Big Society 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact After the talk, there was further discussion about advocacy for disabled children in Singapore and a research student contacted us asking for further details of our work after the event.
Year(s) Of Engagement Activity 2014
 
Description Seminar presentation: "Becoming Dis/human: Thinking about the Human through Disability" 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact We had a full house for our panel and were able to share our emerging work in http://www.dishuman.com - which has extended out of our work on the BigSocietyDis project and allowed us to work with Kirsty and Esther on shared themes of self-advocacy, intimate citizenship and community & family activism'.
Year(s) Of Engagement Activity 2015
URL https://bigsocietydis.wordpress.com/2015/06/18/bigsocietydis-at-the-society-for-disability-studies-a...
 
Description Seminar: Becoming a researcher-in-residence (or the problem with coproduction) 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact Links were made with the Donald Beasley Centre at Otago and strengthened with the department of education at Otago
Year(s) Of Engagement Activity 2015
URL https://bigsocietydis.wordpress.com/2015/08/11/11th-august-2015-becoming-a-researcher-in-residence-o...
 
Description Seminar: DisCivil Society: thinking about coproduction, Social Policy & Social Work, 6th October, 2015 
Form Of Engagement Activity A talk or presentation
Part Of Official Scheme? No
Geographic Reach Regional
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact Links were made with colleagues at SPSW at York and further conversations will be held about future collaborations, particularly around digital exclusion.
Year(s) Of Engagement Activity 2015
URL https://bigsocietydis.wordpress.com/2015/10/08/6th-october-2015-talking-co-production-at-the-centre-...
 
Description Seminar: Disability, Austerity, Resistance Seminar at the University of New South Wales, Australia 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact After the talk, Dan and Katherine were asked to contribute a book chapter to an edited text on social media and disability.
Year(s) Of Engagement Activity 2015
 
Description Working group: Meeting with research & media officers Foundation for People with Learning Disabilities 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Supporters
Results and Impact Following discussion, the research team are working with FPLD to develop two further projects building on the Big Society research
Year(s) Of Engagement Activity 2015
 
Description Workshop Participation: Learning Disability England 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Numerous connections were made with potential partners for future impact and knowledge exchange activities as well as research collaboration.
Year(s) Of Engagement Activity 2015
 
Description Workshop: Every Vote Counts 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach National
Primary Audience Public/other audiences
Results and Impact Member of the research team met up with disability activist to discuss research findings after meeting at the event.
Year(s) Of Engagement Activity 2015
URL https://bigsocietydis.wordpress.com/2014/11/27/every-vote-counts/
 
Description Workshop: Intimate Citizenship 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Public/other audiences
Results and Impact One of the workshop attendees who worked for an advocacy organisation was very keen to take what she had learned about the UK model (including paying self-advocates) back to her organisation.
Discussions were held about future collaborative research bids with partners present.
Year(s) Of Engagement Activity 2015
URL https://bigsocietydis.wordpress.com/2015/09/03/a-hop-across-the-pond-intimate-citizenship-workshop-t...
 
Description Workshop: Learning Disability Think Tank, Manchester 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach Local
Primary Audience Policymakers/politicians
Year(s) Of Engagement Activity 2016
URL https://bigsocietydis.wordpress.com/2016/01/20/15th-january-learning-disability-think-tank-event/
 
Description Workshop: Meeting #PeopleFirst, Dunedin, New Zealand 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Other academic audiences (collaborators, peers etc.)
Results and Impact After the meeting, it was agreed to keep in touch and to think about collaborations in the future.
Year(s) Of Engagement Activity 2015
URL https://bigsocietydis.wordpress.com/2015/08/11/10th-august-2015-meeting-peoplefirst-dunedin-new-zeal...
 
Description Workshop: Quality & Value in Employment 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Delegates suggested taking the message that people with learning disabilities can work back to the department for employment
Year(s) Of Engagement Activity 2015
URL https://bigsocietydis.wordpress.com/2015/09/21/21st-september-2015-big-society-team-returns-to-malay...
 
Description Workshop: The Value of Self Advocacy, Centre for Disability Studies, The University of Sydney 
Form Of Engagement Activity Participation in an activity, workshop or similar
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Supporters
Results and Impact After the workshop, Katherine and Dan met with members of the Inclusive Research Group at the University of Sydney to develop plans for research collaborations.
Year(s) Of Engagement Activity 2015
URL https://bigsocietydis.wordpress.com/2015/08/11/6th-august-2015-the-value-of-self-advocacy-centre-for...
 
Description Workshop: The power of employers 
Form Of Engagement Activity A formal working group, expert panel or dialogue
Part Of Official Scheme? No
Geographic Reach International
Primary Audience Professional Practitioners
Results and Impact Continued contact with the employment team at the engineering organisation.
Year(s) Of Engagement Activity 2015
URL https://bigsocietydis.wordpress.com/2015/09/24/23rd-september-2015-the-power-of-employers/